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Home > “Il faut continuer à poser des questions” patient reported outcome measures in cystic fibrosis: An anthropological perspective

“Il faut continuer à poser des questions” patient reported outcome measures in cystic fibrosis: An anthropological perspective

Resource Type

CF Research News

Authors

Rosa Coucke, Audrey Chansard, Véronique Bontemps, Dominique Grenet, Dominique Hubert, Clémence Martin, Elise Lammertyn, Emmanuelle Bardin, Veerle Bulteel, Frédérique Chedevergne, Muriel Le Bourgeois, Pierre-Régis Burgel, Isabelle Honore, Hilde de Keyser
Maya Kirszenbaum, Paola de Carli, Isabelle Sermet-Gaudelus, Kate Hayes, European Cystic Fibrosis Society-Clinical Trials Network Patient Advisory Group

References

J Cyst Fibros. 2021 Feb 26;S1569-1993(21)00044-8. doi: 10.1016/j.jcf.2021.02.009.
 

Document

PDF icon CF Research News Article [1]

Link

Scientific Abstract [2]

Keywords

Patient reported outcome measures [3]
Patient-led research [4]

Date

Friday, February 26, 2021

Featured resource article

Yes

Resource - Guideline Type

Other Guidelines [5]
Source URL:https://www.ecfs.eu/resource-article/cf-research-news/%E2%80%9Cil-faut-continuer-%C3%A0-poser-des-questions%E2%80%9D-patient-reported-outcome

Links
[1] https://www.ecfs.eu/sites/default/files/cf-research-article-files/JCF-D-20-00471R1_FINAL_Hayes_190321.pdf [2] https://pubmed.ncbi.nlm.nih.gov/33648900/ [3] https://www.ecfs.eu/research-article-keywords/patient-reported-outcome-measures [4] https://www.ecfs.eu/research-article-keywords/patient-led-research [5] https://www.ecfs.eu/resource-guideline-type/other-guidelines