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Home > Designing the GALAXY study: Partnering with the cystic fibrosis community to optimize assessment of gastrointestinal symptoms

Designing the GALAXY study: Partnering with the cystic fibrosis community to optimize assessment of gastrointestinal symptoms

Resource Type

CF Research News

Authors

A Jay Freeman, Meghana Sathe, Enid Aliaj, Drucy Borowitz, Barbra Fogarty, Christopher H Goss, Steven Freedman, Sonya L Heltshe, Umer Khan, Dara Riva, Christina Roman, Melita Romasco, Sarah Jane Schwarzenberg, Carmen A Ufret-Vincenty, Baha Moshiree

References

J Cyst Fibros. 2021 Jan 12;S1569-1993(20)30953-X. doi: 10.1016/j.jcf.2020.12.021. 

Document

PDF icon CF Research News Article [1]

Link

Scientific Abstract [2]

Keywords

Community Involvement [3]
Gastrointestinal [4]
Patient reported outcome measures (proms) [5]

Date

Tuesday, January 12, 2021

Featured resource article

Yes

Resource - Guideline Type

Other Guidelines [6]
Source URL:https://www.ecfs.eu/resource-article/cf-research-news/designing-galaxy-study-partnering-cystic-fibrosis-community

Links
[1] https://www.ecfs.eu/sites/default/files/cf-research-article-files/JCF-D-20-00376R2_FINAL_Freeman_210221.pdf [2] https://pubmed.ncbi.nlm.nih.gov/33451899/ [3] https://www.ecfs.eu/research-article-keywords/community-involvement [4] https://www.ecfs.eu/research-article-keywords/gastrointestinal [5] https://www.ecfs.eu/research-article-keywords/patient-reported-outcome-measures-proms [6] https://www.ecfs.eu/resource-guideline-type/other-guidelines