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Home > The Cystic Fibrosis Foundation Patient Registry. Design and Methods of a National Observational Disease Registry

The Cystic Fibrosis Foundation Patient Registry. Design and Methods of a National Observational Disease Registry

Resource Type

CF Research News

Authors

Knapp EA, Fink AK, Goss CH, Sewall A, Ostrenga J, Dowd C, Elbert A, Petren KM, Marshall BC

References

Ann Am Thorac Soc. 2016 Jul;13(7):1173-9. doi: 10.1513/AnnalsATS.201511-781OC.

Document

PDF icon CF Research News Article [1]

Link

Scientific Abstract [2]

Keywords

registries [3]

Date

Wednesday, July 13, 2016

Featured resource article

Yes

Resource - Guideline Type

Other Guidelines [4]
Source URL:https://www.ecfs.eu/resource-article/cf-research-news/cystic-fibrosis-foundation-patient-registry-design-and-methods

Links
[1] https://www.ecfs.eu/sites/default/files/cf-research-article-files/Knapp%202016%20%28002%29_1.pdf [2] https://www.ncbi.nlm.nih.gov/pubmed/27078236 [3] https://www.ecfs.eu/research-article-keywords/registries [4] https://www.ecfs.eu/resource-guideline-type/other-guidelines