Coordinators:

Janice Abbott 
University of Central Lancashire (UK)

Trudy Havermans
CF Centre - University Hospital Leuven (BE)

 

   

The working group is composed of representatives from several European countries and includes patient and caregiver representatives

Annual Report

 

Aims and objectives

• To develop a multidisciplinary network of clinicians and researchers to facilitate and 
support the dissemination and implementation of the Mental Health Guidelines. 

• To monitor the implementation of Mental Health Screening and identify the range of clinical practice and treatment referral pathways across Europe. 

• To identify driving and restraining themes that CF teams encounter when implementing the guidelines to inform resource issues (financial, physical, human and informational) and best practice. 

• To determine patient / parent and clinician-reported effectiveness / impact of Mental Health Screening. 

• To incorporate Mental Health variables into the ECFS Registry 

• To promote excellence in Mental Health research across the European CF Community 

 

Members of the Core Working Group

Janice Abbott  (Psychologist UK)
Sophie Cammidge  (Psychologist, UK)
Helmut Ellemunter (Paediatrician, Austria)  
Anna Georgiopoulos (Psychiatrist, US; CFF Representative)
Trudy Havermans (Psychologist, Belgium)
Pavla Hodková (Psychologist, Czech Republic)
Stina Järvholm (Psychologist, Sweden) 
Diana Kadosh (Social Worker, Israel)
Maya Kirszenbaum (Psychologist, France)  
Edwina Landau (Psychologist, Israel)
Jacquelien Noordhoek 
(European Parent Association, the Netherlands)
Nicoleta Popa (Nurse, Italy)
Yvonne Prins (Adult with CF and Psychologist, the Netherlands)
Ulrike Smrekar  (Psychologist, Austria)
Doris Staab (Physician, Germany)
Marieke Verkleij (Psychologist, the Netherlands)

Dissemination & Implementation Subgroup
Education & Resources Subgroup

Representation of the ‘global’ ECFS MH Working Group as of May 2017 

Australia 

Cindy Branch-Smith 
Alice Morgan

Austria    

Helmut Ellemunter 
Ulrike Smrekar

Belgium    

Trudy Havermans 

Bulgaria    

Guergana Stoyanova

Croatia    

Srdjan Banac
Dorian Tjesic Drinkovic

Czech Republic    

Pavla Hodková

Estonia    

Urve Putnik
Maire Vasar

France

Maya Kirszenbaum 

Germany  

Doris Staab 

Greece    

Argyri Petrocheilou

Hungary    

Adrienn Halász

Ireland    

Helen Gibbons
Gary Killeen

Israel    

Diana Kadosh 
Edwina Landau 

Italy    

Paola Catastini   
Nicoleta Popa  

The Netherlands    

Jacquelien Noordhoek 
Yvonne Prins 
Marieke Verkleij

Poland    

Urszula Borawska
Renata Zubrzycka

Portugal  

Celeste Barreto

Russia    

Yulia Gorinova
Tatyana Sviridova

Slovenia    

Majda Ostir
Valentina Stefanovo

Spain    

Inéz Pérez
Amparo Solé

Sweden    

Stina Järvholm

Switzerland    

Constance Barazzone 
Julie Halimi 
Daniel Schechter

Ukraine    

Kateryna Yavna

United Kingdom    

Janice Abbott
Sophie Cammidge 

United States (CFF representative)    

Anna Georgiopoulos
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Numerous Patient Organisations have shown interest and will be recognised on the website.