09 March 2017

ECFS Book - Living longer with Cystic Fibrosis

Living longer with Cystic Fibrosis, the title in itself is already a reason to celebrate. Indeed, in developed countries the number of adults with CF now outnumber the children with CF. Dominique Hubert and Nicholas Simmonds identified the necessary contributors to provide an overview of the evidence base in the literature but to also to share their personal experience with the readers. The final result has become a highly interesting and easy-to-read book. With the continuously increasing number of adults with Cystic Fibrosis in every country, there is great need for training young internal medicine specialists in the complex care of adults with Cystic Fibrosis. We hope that this book will help to attract more adult care physicians to the field of CF.
E-Book version freely available

Healthcare issues and challenges in adolescents with cystic fibrosis

Cystic Fibrosis is a disease where parents, patients and clinical team members have to overcome many barriers to ensure optimal treatment is available for individual patients. Adolescence is perhaps one of the most challenging times for people with cystic fibrosis and is in general an under-researched area in the field. The ambition was to cover a range of healthcare issues relevant to young adults in order to provide cystic fibrosis teams and others associated with cystic fibrosis care with a resource to consult when considering some of the difficult issues during adolescence.

We hope that this book will be a useful manual for cystic fibrosis teams. We also anticipate that families and young people with cystic fibrosis will find this book of value.