Executive & Steering Group
Updated 3 May 2012
Executive Committee:
Hanne Vebert Olesen (Director, ECFS Patient Registry)
Anil Mehta
Ulrike Pypops
Laura Viviani
Sophie Ravilly
Vincent Gulmans
Steering Group
Steering Group Country Representatives
| Country | Official Representative | Title | |
| Austria | Thomas Frischer | National registry representative | thomas.frischer@meduniwien.ac.at |
| Belgium | Herwig Jansen | National registry representative | BMR-RBM@wiv-isp.be |
| Bulgaria | Ivanka Galeva | Single center representative | ivankagaleva@yahoo.com |
| Czech Republic | Pavel Drevinek | National registry representative | pavel.drevinek@Lfmotol.cuni.cz |
| Denmark | Hanne Vebert Olesen | National registry representative | hvo@dadlnet.dk |
| France | Sophie Ravilly | National registry representative | sravilly@vaincrelamuco.org |
| Germany | Martin Stern | National registry representative | Martin.Stern@med.uni-tuebingen.de |
| Greece | Elpis Hatziagorou | Single center representative | elpcon@otenet.gr |
| Hungary | Rita Ujhelyi | National registry representative | ujhelyirita@t-online.hu |
| Ireland | Godfrey Fletcher | National registry representative | cfr@ucd.ie |
| Israel | Meir Mei-Zahav | National coordinator | meir_zahav@clalit.org.il |
| Italy | Carla Colombo | National registry representative | |
| Latvia | Karina Mahlina | National coordinator | karina.makhlin@gmail.com |
| Netherlands | Vincent Gulmans | National coordinator | V.Gulmans@ncfs.nl |
| Portugal | Celeste Barreto | National coordinator | celestebarreto@hotmail.com |
| Republic of Moldova | Svetlana Sciuca | National coordinator | |
| Russia | Nataliya Kashirskaya | National registry representative | kashirskayanj@mail.ru |
| Serbia | Natasa Savic | National registry representative | natasas1@ptt.rs |
| Slovakia | Hanka Kayserova | National registry representative | kayserov.hana@gmail.com |
| Slovenia | Uroš Krivec | Single center representative | uros.krivec@kclj.si |
| Spain | Carlos Vazquez-Cordero | National coordinator | carlos.vazquezcordero@osakidetza.net |
| Sweden | Anders Lindblad | National registry representative | anders.lindblad@vgregion.se |
| Switzerland | Martin Schöni | National coordinator | martin-heinrich.schoeni@insel.ch |
| United Kingdom | Elaine Gunn | National registry representative | EGunn@cftrust.org.uk |
| Additional Voting Members: | |||
| Ulrike Pypops, CF Europe representative | |||
| Angeliki Preftitsi, CF Europe representative | |||
Non-Voting Members:
Laura Viviani, Statistical expert
Jacqui van Rens, ECFSPR Executive Coordinator
Isabelle Fajac, CTN representative
Bruce Marshall, CFF representative
Patrizia Iansa, Trusted Third Party
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