European Cystic Fibrosis Society

(Inclusion of these links does imply endorsement by the ECFS of content they may express )  -/-

Associated Organizations

• ECORN-CF - Expert advice on cystic fibrosis
• EuroCareCF - The EuroCareCF Coordination Action for Research in Cystic Fibrosis, funded by the European Commission.
• CF Thematic Network
• Cystic Fibrosis Worldwide 
• European Society for Paediatric Gastroenterology, Hepatology and Nutrition (ESPGHAN)
• Cystic fibrosis International Nurse Specialist Group
• European CF Nutrition Group 
• International Physiotherapy Group for Cystic Fibrosis ( IPG/CF )
• National CF Association Web Sites

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Other Sites of Interest

• Cochrane Collaboration. The Cochrane Collaboration is an international network of individuals and institutions committed to preparing, maintaining, and disseminating systematic reviews of the effects of health care including CF.
• eCysticFibrosis Review is an online review publication from John Hopkins University, Medical School, that addresses key topics in CF. Registration is free and can be carried out on the eCysticFibrosis Review home page.
• Cystic Fibrosis Medicine This dedicated website on cystic fibrosis has been developed to provide clinical information on all aspects of cystic fibrosis.  The site is aimed at health care professionals, individuals with cystic fibrosis and their families. 
• European Respiratory Society
• Pseudomonas Genome Project The complete genome sequence is now available

National CF Association Web Sites

• Australia
  • Cystic Fibrosis Australia National site and provides links to all state CF Associations
• Austria
  • Cystischen Fibrose Hilfe Österreich - Site in German
• Belgium
  • Belgische Vereniging Voor Strijd Tegan Mucoviscidose - Site in Flemish
  • Association Belge de Lutte contre la Mucovisidose - Site in French
• Canada
  • Canadian Cystic Fibrosis Foundation WWW Site - Choice of English or French
• Denmark
  • Danish Cystic Fibrosis Association - Site is in Danish 
• France
  • Association Vaincre la Mucoviscidose - Site is in French (optional English) 
• Germany
  • Mukoviszidose e.V. - Site is in German
  • CF-Selbsthilfe Koeln e.V- Site is in German
• Italy
  • Italian Cystic Fibrosis Research Foundation - Site is in Italian 
  • Lega Italiana Fibrosi Cistica - Site is in Italian
• Ireland
  • The Cystic Fibrosis Association of Ireland
• Israel
  • Cystic Fibrosis Foundation of Israel - Site is mainly in Hebrew
• Netherlands
  • Nederlandse Cystic Fibrosis Stichting - Site is in Dutch but with an English version
• New Zealand
  • Cystic Fibrosis Association of New Zealand
• Norway
  • Norsk Forening For Cystisk Fibrose - Site is in Norwegian
• Portugal
  • Associaçäo Portuguesa de Fibrose Quística - Site is in Portugese
• Slovenia
  • Cystic Fibrosis Association Slovenia. - Site in Slovene
  • Shorter Description in English
• Spain
  • Federación Española contra la Fibrosis Quística - Site is in Spanish
• South Africa
  • South African Cystic Fibrosis Association
• Sweden
  • Riksförborbundet Cystisk Fibros - site is mainly in Swedish
• Russia
  • Russian Cystic Fibrosis Site - site is in Russian
• UK
  • Cystic Fibrosis Trust (UK)
• USA
  • Cystic Fibrosis Foundation (USA)

Conferences and Courses

• theconferencewebsite.com - Search facility for conferences or courses of interest.