European Cystic Fibrosis Society

Establishment

Constitution extract:
2-01-03: The ECFS may form sub-Committees, working parties or study groups from active members for any purpose related to the objective of the society.  Such sub-groups will be appointed and approved by either the annual general meeting or the board.

The ECFS currently supports the following initiatives:

Neonatal Screening Working Group
CF Diagnostic Network Working Group
European Registry
European Clinical Trials Network

Terms of Reference

Any active member of the Society may consider the establishment of a working group supporting a specialist area related to CF.
An application for the establishment for a working group is to be made in writing to the ECFS Board (via the ECFS Office) giving information about the aims, objectives, and structure. The Board may elect to forward the proposal for approval by the Annual General Assembly.

Each working group is to have a Coordinator who is responsible for the overall activities of the group. The Coordinator, or their representative, will provide the ECFS Board with a report at the summer Board Meeting and to the Annual General Assembly. The report should include a business plan for the following year including a programme of meetings to be held for the Board’s approval. It is to be noted that only ECFS Members participating in these approved meetings are eligible for a refund of expenses.

The Working Group Coordinator is to provide information about the group to the webmaster of the ECFS Website, and they are encouraged to use the website to provide progress reports and updates on their activities. The annual report (given to the Board) is to be published on the website.
The working group is encouraged to use the annual conference as an opportunity to conduct a meeting of its members. If desired, a poster can be displayed at the conference outlining the aims, objectives, structure, latest news, etc.