Pre-Conference Programme and Meetings
Updated 14 May 2012
View the Interactive Conference Programme and create your own meetings schedule: Conference Session Planner (click on the Meeting Button on the left side). Here you can also view a detailed programme of certain meetings.
A map for the meetings to be held at Trinity College - Trinity College map
This year’s meetings will be taking place in the CCD (Convention Centre Dublin), as well as in the Hamilton Conference Centre and the Science Gallery, which are both situated on the campus of Trinity College Dublin. From the CCD it is a 7 to 10 minute walk to Trinity College (see map). Cross the River Liffey over Samuel Beckett Bridge, and then continue right along City Quay. Turn left into Lombard Street East, then right into Pearse Street. The building “Naughton Institute” is the Science Gallery, where the ECFS CTN Training and Development Meeting and the ECFS CTN Steering Committee Meeting take place. If you walk through the passage of the building, and continue straight, the Hamilton Conference Centre is to your left. The ECFS Neonatal Screening Working Group and the European CF Nutrition Group meet in the Panoz Institute, which is a part of the Hamilton Conference Centre, and is located through the main entrance to your right. The rooms LTEE 1 and LTEE 2 are located at level -1.
Tuesday 5 June 2012
| 08:30-17:30 | ECFS Board Meeting | Liffey Meeting Room 5 Closed Meeting |
| 08:30-17:00 | Physiotherapy Short Course: Advanced Airway Clearance Techniques |
Liffey Meeting Room 2 Extra Registration Required |
Wednesday 6 June 2012
| 08:30-12:00 | Physiotherapy Short Course (continues) | Liffey Meeting Room 2 |
| 08:30-12:45 | ECFS CTN Training and Development |
Trinity College Naughton Institute, Science Gallery Paccar Theatre Closed Meeting |
| 09:00-12:00 | CF Pharmacists Meeting International Approaches to Therapy |
Wicklow Meeting Room 3 |
| 09:00-14:45 | ECFS Exercise Working Group Meeting |
Liffey Meeting Room 4 Closed Meeting |
| 09:30-16:00 | European Psychosocial Special Interest Group (EPSIG) Meeting |
Liffey Meeting Room 5 Extra Registration Required |
| 09:15-16:15 | International Nurse Specialist Group/CF Meeting | Liffey Meeting Room 3 Extra Registration Required |
| 09:30-16:30 | CFE/CFAI/CFW/ECFS Symposium | Liffey Hall 1 |
| 09:30-16:15 | European Cystic Fibrosis Nutrition Group Meeting | Trinity College Hamilton Conference Centre LTEE 2 |
| 09:45-13:15 | ECFS Neonatal Screening Working Group Comparing Strategies and Moving Forward |
Trinity College Hamilton Conference Centre LTEE 3 |
| 12:00-13:30 | International Physiotherapy Group for Cystic Fibrosis (IPG/CF) Annual General Meeting |
Liffey Meeting Room 2 |
| 13:15-16:30 | ECFS CTN Steering Group Meeting |
Trinity College Naughton Institute, Science Gallery Paccar Theatre Closed Meeting |
| 14:00-17:00 | CF Ageing Group Meeting | Wicklow Meeting Room 3 |
| 14:00-16:00 | Physiotherapy Case Presentations | Liffey Meeting Room 2 |
| 15:00-17:00 | ECFS Patient Registry Executive Committee Meeting |
Liffey Meeting Room 4 Closed Meeting |
| 17:00-18:00 | ECFS Annual General Meeting | Liffey Hall 1 ECFS Members only |
| 20:00-21:30 | ECFS Gene Modifier Working Group Meeting | Liffey Meeting Room 4 |
Thursday 7 June 2012
| 12:30-14:30 | ECFS Patient Registry Steering Group Meeting |
Wicklow Hall 1 Closed Meeting |
| 12:30-14:30 | ECFS Lung Microbiome Working Group Meeting | Wicklow Hall 2 Closed Meeting |
| 12:30-14:00 | International CF Diabetes Study | Liffey Hall 1 |
| 12:30-13:30 | Paediatric CF Consultants Meeting | Liffey Hall 2 |
| 18:45-19:45 | ECFS Patient Registry Contributors Meeting | Liffey Hall 1 |
Friday 8 June 2012
| 07:30-08:30 | Journal of CF Editorial Board Meeting | Liffey Meeting Room 3 Closed Meeting |
| 11:00-14:30 | ECORN-CF Quality Round Table Meeting | Liffey Meeting Room 3 |
| 12:00-14:30 | IMPACTT (IgY) Meeting | Wicklow Hall 1 Closed Meeting |
| 12:30-14:30 | ECFS Diagnostic Network Working Group Meeting | Wicklow Hall 2 |
| 18:30-20:30 | ECFS CTN Standardisation Committee Meeting | Wicklow Hall 1 Closed Meeting |
Saturday 9 June 2012
| 13:30-18:00 | ECFS Scientific Committee Meeting - Lisbon 2013 |
Liffey Meeting Room 5 |
CF Pharmacists Meeting- International Approaches to Therapy
6 June 09:00 - Wicklow Meeting Room 3
To Identify Different Approaches to Therapy
To Share Current Practice on Key Topics
To Promote Sharing of Best Practice
| 09:00-09:10 | Introduction Amanda Plummer, Sheffield, United Kingdom |
| 09:10-09:30 | Treatment of DIOS Clare Cox, Cambridge, United Kingdom |
| 09:30-09:50 | Off Label Use of Nebulisers Keith Thompson, London, United Kingdom |
| 09:50-10:10 | Is Azithromycin Maintenance in CF Patients Associated with Antibiotic Resistance? Optimisation of Itraconazole Use in ABPA Rachel Worthington, Sydney, Australia |
| 10:10-10:30 | What Is the Pharmacist’s Role in Adherence Support? Amanda Plummer, Sheffield, United Kingdom |
| 10:30-10:50 | Coffee Break |
| 10:50-11:10 | Continuous Beta-Lactam Infusion Robert Kuhn, Lexington, United States |
| 11:10-11:30 | Tobramycin: Levels or Pharmacokinetic Principles? Nicola Shaw, Leeds, United Kingdom |
| 11:30-11:50 | Contraception in CF Sarah Huntington, Leeds, United Kingdom |
| 11:50-12:00 | Summary Amanda Plummer, Sheffield, United Kingdom |
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ECFS Exercise Working Group Meeting
| 09:00-09:30 | Introduction Helge Hebestreit, Wuerzburg, Germany |
| 09:30-11:00 |
Clinical Practice Guideline: Exercise Testing |
| 11:00-11:30 | Coffee Break |
| 11:30-13:00 | Clinical Practice Guideline: Assessment of Physical Activity Judy Bradley, Belfast, United Kingdom / Erik Hulzebos, Utrecht, The Netherlands |
| 13:00-13:30 | Lunch Break |
| 13:30-14:45 | Clinical Practice Guideline: Activity/Exercise Counselling Wolfgang Gruber, Berlin, Germany |
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European Psychosocial Special Interest Group (EPSIG) Meeting
| 09:30-09:35 | Introduction |
| Topic 1: Newborn Screening | |
| 09:35-09:55 | Was It Something We Said? (NBS) Vanessa McMahon, Vancouver, Canada |
| 09:55-10:15 | Abandonment of a Child after Giving the Diagnosis from NSCF Pavla Hodkova, Prague, Czech Republic |
| Topic 2: Transplantation | |
| 10:15-10:30 | Psychodynamics/Impact of Adult Lung Transplants Raphaelle Pauthe-Farcy, Paris, France |
| 10:30-10:50 | Paediatric Lung Transplantation: An Overview of Complex Cases Barbara Wijnberg-Williams, Groningen, The Netherlands |
| 10:50-11:00 | Discussion |
| 11:00-11:15 | Coffee Break |
| Topic 3: Complex Cases | |
| 11:15-11:35 | Borderline Personality Disorder and CF Alexandra Saey, Antwerp, Belgium |
| 11:35-12:00 | “But in Any Case I Have No Other Choice“ Maya Kirszenbaum, Paris, France |
| 12:00-13:30 | Lunch Break |
| Topic 4: A Special Look from Inside | |
| 13:30-14:00 | Interview of a Mother with CF, Having a Child with CF Caroline Wessen, Ireland / Kate Russo, Belfast, United Kingdom |
| 14:00-14:20 | Discussion |
| Topic 5: Late CF Diagnosis | |
| 14:20-14:35 | Psychosocial Care Following Diagnosis in Adulthood/Adolescence Nicola Reid, Manchester, United Kingdom |
| 14:35-14:45 | Discussion |
| 14:45-15:00 | Coffee Break |
| Topic 6: New Medicines in CF | |
| 15:00-15:30 | Update on Medical Progress in Cystic Fibrosis Treatment Margarida Amaral, Lisbon, Portugal |
| 15:30-15:50 | Implications for Our Psychosocial Work Discussion |
| 15:50-16:00 | Closing Remarks |
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International Nurse Specialist Group/CF Meeting
| 09:15-09:45 | Coffee and Registration |
| 09:45-10:00 | Welcome Valerie Hall, Belfast, United Kingdom |
| 10:00-11:00 | Adolescents with Cystic Fibrosis – A PhD Study Vibsen Bregnballe, Aarhus, Denmark Moderator: Ellen Julie Hunstad, Oslo, Norway |
| 11:00-12:00 | Fertility Issues in Cystic Fibrosis – Use of IVF and PGD John Waterstone, Cork, Ireland Moderator: Cathy Shortt, Cork, Ireland |
| 12:00-12:30 | Case Presentation: Pregnancy in Cystic Fibrosis – A Complex Case Catherine O’Carroll, Dublin, Ireland |
| 12:30-13:30 | Lunch Break |
| 13:30-14:30 |
Renal Disease in Cystic Fibrosis – More Than Meets the Eye Moderator: Geraldine Leen, Dublin, Ireland |
| 14:30-15:00 | Case Presentation: CF Patient with Progressive Kidney Disease – A Challenging Case Cathy Shortt, Cork, Ireland |
| 15:00-15:15 | Coffee Break |
| 15:15:16:15 | Annual General Meeting INSG-CF Information from Committee Presentation of New Committee National Presentations |
| Closing of Annual Nurse Meeting | |
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CFE/CFAI/CFW/ECFS Joint preconference symposium
IMPROVING ACCESS TO QUALITY CARE IN CF: HOW PATIENTS AND PROFESSIONNALS CAN WORK TOGETHER!
Dublin, Conference Center - Wednesday 6 June 2012 - 09:30-17:00
Cost: Free
Organizers: CF Europe (CFE), CF Association Ireland (CFAI), CF Worldwide (CFW) and the European CF Society (ECFS).
Introduction and Rationale:
This year the CFAI, CFE, ECFS and CFW are coming together to organise a symposium focussing on strengthening the unique contribution that patient organisations and professionals involved in CF care can make to improving CF care in Europe.
Patient and medical organizations are organizing a pre-conference meeting on strengthening the unique contribution that patient organisations and professionals involved in CF care can make to improving access to quality care in CF. The meeting is of particular interest to patient organisations, directors and members of the CF care team (physicians and allied health professionals) and people involved in health policy.
If you wish to attend this pre-conference symposium, but are not registered for the ECFS conference, please send your details to hilde@muco.be before May 15.
If you wish to attend this pre-conference symposium, but are not registered for the ECFS conference, please send your details to hilde@muco.be before May 15.
Draft agenda Joint Pre-conference Symposium
| 09:30 | Registration, Coffee and Tea |
| Morning Programme Chair: Philip Watt, CEO, CFAI |
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| 09:45-10:00 | Welcome: John Coleman, Chair of CFAI |
| 10:00-10:45 | Summary of important recent developments in CF care and research (ECFS): Stuart Elborn (President, ECFS) |
| 10:45-11:00 | The strength of working together: Stuart Elborn (ECFS) and Karleen De Rijcke (CFE) |
| 11:00-11:50 | Quality improvement in CF care, successful experiences in Europe Chair: ECFS + Vincent Gulmans (NCFS) - The UK Peer Review and Clinical Care Improvement Programme, by Jo Osmond (CF Trust) - The German quality improvement programme, by Marguerite Honer (Muko e.V.) - Q&A session |
| 11:50-12:15 | Coffee and Tea |
| 12:15-13:00 | Impacting on health policy to improve access to care in CF Chair: Anil Mehta (ECFS-tbc) and Karleen De Rijcke (CFE) - How patient associations and health care authorities can join forces to improve access to care, a successful story from Macedonia, by Snezana Bojcin, President CF Macedonia and a health official from Macedonia - How CF Ireland succeeded to improve access to quality CF care... - Q&A session |
| 13:00-14:30 | Working Lunchtime Event on Newborn Screening (Including Marking of First Anniversary of Introduction into Ireland) Philip Farrell, Madison, United States / David Barton, Dublin, Ireland |
| Afternoon Programme Chair: Christine Noke, CFW Executive Director |
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| 14:30-16:30 |
Training Session on Grant writing Example: Gilead Online Grant Applications |
| Concluding Comments | |
| 'Craic agus Ceol' - Evening Dinner and Concert (free to those attending the symposium) | |
| 21:00 | Buffet Meal: Gibson Hotel, Dublin |
| 21:45 | De Dannan concert: Gibson Hotel Dublin |
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European Cystic Fibrosis Nutrition Group Meeting
| 09:30-10:00 | Coffee and Registration |
| 10:00-11:10 | Annual General Meeting CF Dietetic Services – Current Concepts and Future Delivery |
| 11:10-11:30 | ECFNG Member Survey: Current Practice and Future Priorities Chris Smith, Brighton, United Kingdom |
| 11:30-11:50 | Service Provision in a Paediatric Regional Centre Helen McCabe, Newcastle, United Kingdom |
| 11:50-12:10 | Motivational Interviewing and Dietetics – A Fresh Approach to Adherence Issues Claire Evans, Birmingham, United Kingdom |
| 12:10-12:30 | Growth Outcomes in Children with Moderate-to-Severe CF on an Intensive Exercise and Dietetic Programme Elizabeth Owen, London, United Kingdom |
| 12:30-13:00 | Discussions and Questions |
| 13:00-14:00 | Lunch Break |
| 14:00-14:30 | Nutrition in Transplantation - Nutritional Status and Nutritional Support in Cystic Fibrosis Patients before and after Lung Transplantation Francis Hollander, Utrecht, The Netherlands |
| 14:30-15:00 | Nutritional and Metabolic Outcomes for Simultaneous Liver and Pancreas Transplant in Cystic Fibrosis: 2 Case Studies Fiona Bartlett, London, United Kingdom |
| 15:00-15:15 | Coffee Break |
| 15:15-15:45 | Case Study Presentations: Rapid Weight Decline in-between Frequent Hospital Admissions – How Do We Optimally Manage these Cases? Penny Walker, London, United Kingdom |
| 15:45-16:15 | Vitamin K Deficiency in the CF Infant Kate Maslin, Southampton, United Kingdom |
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ECFS Neonatal Screening Working Group
Trinity College, Hamilton Conference Centre, LTEE 3 - Wednesday 6 June 2012 - 10:00-13:00
| 10:00-10:15 | Welcome to Dublin Dr Barry Linnane, Mid-western Regional Hospital, Limerick |
| 10:15-10:45 | The NBS Working Group; more work needed? An update on global practice and future objectives Dr Kevin Southern, University of Liverpool |
| 10:45-11:10 |
Establishing CF newborn screening in Eire. |
| 11:10-11:35 | Newborn screening in the Netherlands; translating research into clinical practice. Dr Jeannette Dankert-Roelse, Atrium Medisch Centrum, Heerlen |
| 11:35-12:15 | Newborn strategies across the USA; comparing strategies Dr Marci Sontag, Colorado School of Public Health, University of Colorado |
| 12:15-12:45 | Working towards an international consensus on the management of an equivocal diagnosis. Dr Sarah Mayell, Alder Hey Children’s Hospital, Liverpool |
| 12:45 | Lunch and further discussion |
| This meeting has been supported by an educational grant from Perkin Elmer | |
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Physiotherapy Case Presentations
Moderators: Brenda Button, Melbourne, Australia / Libuse Smolikova, Prague, Czech Republic
| 14:00-14:15 | No Room to Move – The Impact of Pseudo-Membranous Colitis on Usual Physiotherapy Care Jamie Wood, Nedlands, Australia |
| 14:15-14:30 | Chest Physiotherapy During Anaesthesia in an Adult Patient with CF Maria Cecilia Rodriguez Hortal, Stockholm, Sweden |
| 14:30-14:45 | When Is Enough Really Enough? Emily Scott, London, United Kingdom |
| 14:45-15:00 | Mind the Bump! Issues in a Cystic Fibrosis Pregnancy Fiona Shaw, London, United Kingdom |
| 15:00-15:15 | Fear of Sputum Marie Bolton, Nottingham, United Kingdom |
| 15:15-15:30 |
Therapeutic Ultrasound Treatment (TUS) for Symptomatic Relief of Sinusitis in Adults with Cystic Fibrosis |
| 15:30-15:45 | Your Quality of Life or Mine? The Complexities of NIV Dependence with Increased Life Expectancy Helen Parrott, London, United Kingdom |
| 15:45-16:00 | “A 'Hole' Lot of Air”: A Case Presentation to Discuss the Physiotherapy Management of a Teenage Girl with Severe Subcutaneous Emphysema and Cystic Fibrosis Louisa Hill, London, United Kingdom |
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